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The importance of remembrance

On the Cystic Fibrosis Trust’s 25th anniversary in 1989, we unveiled a new Book of Remembrance, to act as a special place to remember those who have died of cystic fibrosis (CF). This was to be a special place to remember special people, and a reminder of why we must continue fighting against this condition.

Michael Clark - Cystic Fibrosis

Michael Clark
Gifts in Wills and In-memory Manager

I joined the Trust in October 2013. The most special part of my job is usually also the saddest; it is speaking with the bereaved families. What shines through in the conversations, however, is the phenomenal lives that many people with cystic fibrosis tend to lead, and the memories they leave behind for their families.

I have long since believed that there is no stronger emotion than the love we have for others; I changed careers from a private practice to the charity sector in 2007 as a result of personal bereavement, and I have never looked back or regretted it. After all, we may want a nice house, holiday and plenty of money, but you can’t buy love, friendship or companionship. And showing support at and beyond bereavement is one of the most rewarding ways to engage work time.

Understanding our supporters

The Cystic Fibrosis Trust works hard every day, only through the fantastic support of those who donate, fundraise, and raise awareness, to invest in cutting-edge research and campaign on the issues that matter, as well as to provide information and support to those affected by this life-limiting condition. We understand that many support us in memory of a loved one who has died of the condition, and we believe that anyone who continues to support us is doing something sensational; we truly believe that gifts in memory of loved ones are an amazing act of kindness and something we feel humbled to receive.

We want and need to support our in-memory supporters: that’s why last year we launched our online Book of Remembrance. We know why we must continue fighting. We are saddened every time we hear of the death of someone with cystic fibrosis, and our online book allows us to showcase these people and ensure they will never be forgotten. We cherish their lives, and they remind us that we must continue fighting. Our online book provides a special place for friends, family, loved ones or the Cystic Fibrosis Trust to remember special people.


Julie PentecostThe importance of remembrance
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